Understanding Rett Syndrome and Its Impact on Families
0:44
TikTokjays.rett.journey
Understanding Rett Syndrome and Its Impact on Families
Explore the heartbreaking regression due to Rett Syndrome and its effects on families. Discover insights, support, and awareness. #rettsyndrome #regression #grief Jay’s RETTy for a cure(@jays.rett.journey). Indigo Sam Barber ft. Avery Anna - Sam Barber Sounds
2.2M viewsDec 19, 2024
Shorts
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Even something as small as a cold or allergies can affect Milann’s body
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Top videos
Understanding Rett Syndrome and Autism in TikTok Physiotherapy Videos
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Understanding Rett Syndrome and Autism in TikTok Physiotherapy Videos
TikTokdananumberone
1.3M viewsFeb 13, 2024
Some days are harder than others. Today she fell off the couch during a Rett episode and I felt so bad seeing her face red. But she used her eye gaze to tell me she was okay, and then she told me what she wanted. I just want her to feel safe and loved. Having a special needs child is not easy, especially when seizures and Rett episodes are involved — falls can happen often, and we’re doing our best every day. #specialneeds #epilepsy #disability #momsoftiktok #fyp
0:38
Some days are harder than others. Today she fell off the couch during a Rett episode and I felt so bad seeing her face red. But she used her eye gaze to tell me she was okay, and then she told me what she wanted. I just want her to feel safe and loved. Having a special needs child is not easy, especially when seizures and Rett episodes are involved — falls can happen often, and we’re doing our best every day. #specialneeds #epilepsy #disability #momsoftiktok #fyp
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Understanding Rett Syndrome and Autism in TikTok Physiotherapy Videos
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TikTokdananumberone
Some days are harder than others. Today she fell off the couch during a Rett episode and I felt so bad seeing her face red. But she used her eye gaze to tell me she was okay, and then she told me what she wanted. I just want her to feel safe and loved. Having a special needs child is not easy, especially when seizures and Rett episodes are involved — falls can happen often, and we’re doing our best every day. #specialneeds #epilepsy #disability #momsoftiktok #fyp
0:38
Some days are harder than others. Today she fell off the couch during a Rett episode and I felt so bad seeing her face red. But she used her eye gaze to tell me she was okay, and then she told me what she wanted. I just want her to feel safe and loved. Having a special needs child is not easy, especially when seizures and Rett episodes are involved — falls can happen often, and we’re doing our best every day. #specialneeds #epilepsy #disability #momsoftiktok #fyp
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Even something as small as a cold or allergies can affect Milann’s body
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TikTokyasmin__shine
0:52
Rare Disease Day 💜🦋 Today, for us, it’s about Rett Syndrome. A rare genetic neurological disorder caused by a mutation on the MECP2 gene. It takes words, hand use, mobility — and replaces them with seizures, breathing struggles, and complex medical needs. It’s unpredictable. It’s lifelong. It’s invisible to many. Rare doesn’t mean small. It means underfunded, misunderstood, and often unseen. Hope is rare. And so is her strength. 💜🦋 #RareDiseaseDay #RettSyndrome #MECP2 #RareButStrong
15.5K views4 months ago
TikTokhope4hoperettwarrior
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Repetitive hand movements known as hand wringing is one of the hallmark traits of #rettsyndrome . This lead is to our #diagnosis. #rettsyndromeawareness #rettsyndromeawarenessmonthoct #awarenessmatters #inclusionmatters
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Short videos

0:44
Understanding Rett Syndrome and Its Impact on Families
2.2M viewsDec 19, 2024
TikTokjays.rett.journey
0:15
Understanding Rett Syndrome and Autism in TikTok Physiotherapy Videos
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Some days are harder than others. Today she fell off the couch during a Rett episode
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Understanding Rett Syndrome: Awareness Month Information
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1:16
Even something as small as a cold or allergies can affect Milann’s body
552 views1 week ago
YouTubeThe_Fitness_Way_to_Cope
1:27
Understanding Rett Syndrome and EEG Monitoring
230.7K views5 months ago
TikTok_bodiedbybri
1:43
Rett Syndrome Laughing Seizures: Understanding Gelastic Episodes
134.1K viewsMar 13, 2024
TikTokjays.rett.journey
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Understanding Rett Syndrome through Astrid's Eyes
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Sophia's Diagnosis Journey: A 5-Year Struggle
18.8K views5 months ago
TikToknataliecweaver
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Rare Disease Day 💜🦋 Today, for us, it’s about Rett Syndrome. A rare genetic neurological
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TikTokhope4hoperettwarrior
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Repetitive hand movements known as hand wringing is one of the hallmark traits of
15.6K viewsOct 5, 2022
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Teen With Rett Syndrome Gets The Prom Surprise Of A Lifetime.
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